Multidisciplinary, Interdisciplinary and Transdisciplinary Care

The Brightest Rainbow Follows the Darkest Storm

Robert Lake McFarland Clinic. Stanford School of Medicine.United States ChildrenChildren 2020; DOI: 10.3390/children711022 AbstractA parent’s perspective on pulmonary vein stenosis through the experience of two children with the disease. CategoryStenosis or Obstruction of Normal Pulmonary Venous ConnectionsMultidisciplinary Care Year of Publication: 2020 Age Focus: Pediatric Article Type: Editorial or Letter Article Access: Free PDF File or […]

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New Paradigms for Pulmonary Vein Stenosis Treatment: When Surgery and Transcatheter Therapy Aren’t Good Enough

Usama B. Kanaan, William T. Mahle Children’s Healthcare of Atlanta and Emory University School of Medicine.United States Journal of PediatricsJ Pediatr 2018; 198: 12-13DOI: 10.1016/j.jpeds.2018.01.082 AbstractAbstract Not Available CategoryStenosis or Obstruction of Normal Pulmonary Venous ConnectionsStenosis or Obstruction of Pulmonary Veins Following Surgical Repair of Anomalous Pulmonary Venous ConnectionsMultidisciplinary CareMedical Therapy to Prevent or Reverse the

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Patients as a Limited Resource? Ethical Dilemmas in Pediatric Pulmonary Vein Stenosis

Michaela Asher, Michael O’Byrne, Ryan Callahan, Constantine D. Mavroudis Children’s Hospital of Philadelphia.United States Journal of Clinical EthicsJ Clin Ethics 2026;DOI: https://doi.org/10.1086/739011 AbstractThis study explores tensions between rarity, research, and clinical decision-making in surgical diseases through a case study of pediatric pulmonary vein stenosis (PVS), an extremely rare and severe pediatric cardiopulmonary disease. We first

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Systemic Sirolimus Monitoring in Pediatric Pulmonary Vein Stenosis

Heather Meluskey, Bridget Blowey, Anna B. O’Brien, Michael L. O’Byrne, Jonathan J. Rome, David B. Frank, Catherine M. Avitabile, Mudit Gupta, Jessica Tang, Kimberly L. Butler, Constantine D. Mavroudis, Stephanie Fuller, Ryan Callahan Children’s Hospital of Philadelphia and Perelman School of Medicine at the University of Pennsylvania. Dell School of Medicine at the University of

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Exploring Stress and Coping in Caregivers of Children with Pulmonary Vein Stenosis: A Mixed-Method Study

Mark Fuller, Jr., Christina Ireland, Rachel Zmora, Kathy Jenkins Boston Children’s Hospital and Harvard Medical School. Northwestern University Feinberg School of Medicine.United States ChildrenChildren 2024; 11:DOI: 10.3390/children11081008 AbstractBackground: This mixed-method study aims to identify and describe factors associated with acute and long-term parenting stressors and coping strategies in caregivers of children with intraluminal pulmonary vein stenosis

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Improving Outcomes in Pulmonary Vein Stenosis: Novel Pursuits and Paradigm Shifts

Rachel D. Vanderlaan Hospital for Sick Children.Canada Seminars in Thoracic and Cardiovascular Surgery Pediatric Cardiac Surgery AnnualSemin Thorac Cardiovasc Surg Pediatr Card Surg Annu 2024; 27: 92-99DOI: 10.1053/j.pcsu.2024.01.003 AbstractPulmonary vein stenosis (PVS) remains a clinical challenge, with progressive restenosis being common. In the past five years, we have seen an exponential increase in both clinical and

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Commentary: It takes a village: Changing the trajectory of pulmonary vein stenosis outcomes

Rachel D. Vanderlaan, Osami Honjo The Hospital for Sick Children and University of Toronto.Canada Journal of Thoracic and Cardiovascular SurgeryJ Thorac Cardiovasc Surg 2020; 159: 1037-1038DOI: 10.1016/j.jtcvs.2019.09.100 AbstractAbstract Not Available CategoryStenosis or Obstruction of Normal Pulmonary Venous ConnectionsMultidisciplinary Care Year of Publication: 2020 Age Focus: Pediatric Article Type: Editorial or Letter Article Access: Free PDF File

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Surgical repair of neonatal total anomalous pulmonary venous connection: A single institutional experience with 241 cases

Jin Shentu, Guocheng Shi, Qian Zhang, Chen Wen, Hao Zhang, Zhongqun Zhu, Huiwen Chen Shanghai Children’s Medical Center and Shanghai Jiao Tong University.China Journal of Thoracic and Cardiovascular Surgery OpenJ Thorac Cardiovasc Surg Open 2023; 16: 739-754DOI: 10.1016/j.xjon.2023.07.021 AbstractObjective: Challenges persist in surgery for neonatal total anomalous pulmonary venous connection (neoTAPVC), with the high mortality risk not

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Primary pulmonary vein stenosis during infancy: state of the art review

David B. Frank, Philip T. Levy, Corey A. Stiver, Brian A. Boe, Christopher W. Baird, Ryan M. Callahan, Charles V. Smith, Rachel D. Vanderlaan, Carl H. Backes University of Pennsylvania and Children’s Hospital of Philadelphia. Harvard University and Boston Children’s Hospital. Ohio State University and Nationwide Children’s Hospital. University of Washington and Seattle Children’s Research

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Pulmonary vein stenosis: Treatment and challenges

Rachel D. Vanderlaan, Jonathan Rome, Russel Hirsch, Dunbar Ivy, Christopher A. CaldaroneHospital for Sick Children. Children’s Hospital of Philadelphia. Cincinnati Children’s Hospital. Children’s Hospital Colorado. Texas Children’s Hospital and Baylor College of Medicine.Canada and United States Journal of Thoracic and Cardiovascular SurgeryJ Thorac Cardiovasc Surg 2021; 161: 2169-2176DOI: 10.1016/j.jtcvs.2020.05.117 AbstractNo Abstract CategoryStenosis or Obstruction of Normal

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