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Michaela Asher, Michael O’Byrne, Ryan Callahan, Constantine D. Mavroudis Children’s Hospital of Philadelphia.United States Journal of Clinical EthicsJ Clin Ethics 2026;DOI: https://doi.org/10.1086/739011 AbstractThis study explores tensions between rarity, research, and clinical decision-making in surgical diseases through a case study of pediatric pulmonary vein stenosis (PVS), an extremely rare and severe pediatric cardiopulmonary disease. We first […]