Multidisciplinary, Interdisciplinary and Transdisciplinary Care

Imatinib Mesylate and Sirolimus Inhibit Vascular Fibroproliferative Remodeling in Pulmonary Vein Stenosis

Julia Gaal, Sophie C. Doettl, Kerstin Saraci, Cindy Zajac, Alexa von Mueffling, Peter E. Hammer, Magnus von Piechowski, Verena Gebert, Andrei-Antonio M. Caracioni, Daniel Diaz-Gil, Viktoria Weixler, Pedro J. Del Nido, Kathy Jenkins, Ingeborg Friehs Boston Children’s Hospital and Harvard Medical School. German Heart Center of Charité-Universitätsmedizin Berlin.United States and Germany ChildrenChildren 2026; 13:DOI: 10.3390/children13091280

Imatinib Mesylate and Sirolimus Inhibit Vascular Fibroproliferative Remodeling in Pulmonary Vein Stenosis Read More »

A translational framework for patient-specific modeling of pulmonary vein stenosis

Manish Bansal, Jeffrey S. Heinle, Athar M. Qureshi, Ravi K. Birla Texas Children’s Hospital Heart Center and Baylor College of Medicine.United States Journal of Thoracic and Cardiovascular Surgery OpenJTCVS Open 2026;DOI: 10.1016/j.xjon.2026.101858 AbstractAbstract Not Available CategoryMultidisciplinary, Interdisciplinary and Transdisciplinary Care Year of Publication: 2026 Age Focus: Pediatric Article Type: Editorial or Letter Article Access: Free PDF

A translational framework for patient-specific modeling of pulmonary vein stenosis Read More »

Impact of Structured Surveillance and Intervention on Long-Term Vein Outcomes in Pediatric Pulmonary Vein Stenosis

Ashish Saini, Andrew Jergel, Yijin Xiang, Rosemary Gray, Dennis W. Kim, James A. Kuo Children’s Healthcare of Atlanta and Emory University School of Medicine.United States ChildrenChildren 2026; DOI: 10.3390/children13070933 AbstractBackground: Pediatric pulmonary vein stenosis (PVS) is a progressive and recurrent condition associated with high morbidity and mortality. Long-term outcomes of individual pulmonary veins remain poorly described. Methods: All pediatric

Impact of Structured Surveillance and Intervention on Long-Term Vein Outcomes in Pediatric Pulmonary Vein Stenosis Read More »

Transcatheter Interventional Options in Pulmonary Vein Stenosis: When to Stent?

Heidi Van Christopher J. Petit, Oliver M. Barry Columbia University Vagelos College of Physicians and Surgeons and NewYork-Presbyterian Hospital Morgan Stanley Children’s HospitalUnited States Seminars in Thoracic and Cardiovascular Surgery Pediatric Cardiac Surgery AnnualSemin Thorac Cardiovasc Surg Pediatr Card Surg Ann 2026;DOI: 10.1053/j.pcsu.2026.02.007 AbstractPulmonary vein stenosis (PVS) is a rare and aggressive condition in infants and

Transcatheter Interventional Options in Pulmonary Vein Stenosis: When to Stent? Read More »

Catheter and echocardiographic-focused management of primary pulmonary vein stenosis in premature infants: a single center 5-year experience

Keira Nassetta Conor P. O’Halloran, Emily Hoyt, Matthew Cornicelli, Nicolas Porta, Jeremy Fox, Alan W. Nugent, Paul Tannous, Amanda Hauck Ann and Robert H. Lurie Children’s Hospital of Chicago.United States Journal of PerinatologyJ Perinatol 2026; DOI: 10.1038/s41372-026-02611-2 AbstractBackground/objectives: We describe the outcomes of pulmonary vein stenosis treatment in a cohort of premature infants using an assertive percutaneous

Catheter and echocardiographic-focused management of primary pulmonary vein stenosis in premature infants: a single center 5-year experience Read More »

The Brightest Rainbow Follows the Darkest Storm

Robert Lake McFarland Clinic. Stanford School of Medicine.United States ChildrenChildren 2020; DOI: 10.3390/children711022 AbstractA parent’s perspective on pulmonary vein stenosis through the experience of two children with the disease. CategoryStenosis or Obstruction of Normal Pulmonary Venous ConnectionsMultidisciplinary Care Year of Publication: 2020 Age Focus: Pediatric Article Type: Editorial or Letter Article Access: Free PDF File or

The Brightest Rainbow Follows the Darkest Storm Read More »

New Paradigms for Pulmonary Vein Stenosis Treatment: When Surgery and Transcatheter Therapy Aren’t Good Enough

Usama B. Kanaan, William T. Mahle Children’s Healthcare of Atlanta and Emory University School of Medicine.United States Journal of PediatricsJ Pediatr 2018; 198: 12-13DOI: 10.1016/j.jpeds.2018.01.082 AbstractAbstract Not Available CategoryStenosis or Obstruction of Normal Pulmonary Venous ConnectionsStenosis or Obstruction of Pulmonary Veins Following Surgical Repair of Anomalous Pulmonary Venous ConnectionsMultidisciplinary CareMedical Therapy to Prevent or Reverse the

New Paradigms for Pulmonary Vein Stenosis Treatment: When Surgery and Transcatheter Therapy Aren’t Good Enough Read More »

Patients as a Limited Resource? Ethical Dilemmas in Pediatric Pulmonary Vein Stenosis

Michaela Asher, Michael O’Byrne, Ryan Callahan, Constantine D. Mavroudis Children’s Hospital of Philadelphia.United States Journal of Clinical EthicsJ Clin Ethics 2026;DOI: https://doi.org/10.1086/739011 AbstractThis study explores tensions between rarity, research, and clinical decision-making in surgical diseases through a case study of pediatric pulmonary vein stenosis (PVS), an extremely rare and severe pediatric cardiopulmonary disease. We first

Patients as a Limited Resource? Ethical Dilemmas in Pediatric Pulmonary Vein Stenosis Read More »

Systemic Sirolimus Monitoring in Pediatric Pulmonary Vein Stenosis

Heather Meluskey, Bridget Blowey, Anna B. O’Brien, Michael L. O’Byrne, Jonathan J. Rome, David B. Frank, Catherine M. Avitabile, Mudit Gupta, Jessica Tang, Kimberly L. Butler, Constantine D. Mavroudis, Stephanie Fuller, Ryan Callahan Children’s Hospital of Philadelphia and Perelman School of Medicine at the University of Pennsylvania. Dell School of Medicine at the University of

Systemic Sirolimus Monitoring in Pediatric Pulmonary Vein Stenosis Read More »

Exploring Stress and Coping in Caregivers of Children with Pulmonary Vein Stenosis: A Mixed-Method Study

Mark Fuller, Jr., Christina Ireland, Rachel Zmora, Kathy Jenkins Boston Children’s Hospital and Harvard Medical School. Northwestern University Feinberg School of Medicine.United States ChildrenChildren 2024; 11:DOI: 10.3390/children11081008 AbstractBackground: This mixed-method study aims to identify and describe factors associated with acute and long-term parenting stressors and coping strategies in caregivers of children with intraluminal pulmonary vein stenosis

Exploring Stress and Coping in Caregivers of Children with Pulmonary Vein Stenosis: A Mixed-Method Study Read More »